Celine Dion’s sister shares tragic update after singer’s Stiff Person Syndrome diagnosis

Celine Dion’s sister has shared an update on how the iconic singer is doing

Celine Dion's sister reveals that the singer continues to have hope despite no improvement in Stiff-Person Syndrome
(Image credit: Edward Berthelot/GC Images)

Celine Dion bravely shared with the world that she was facing an uncertain future after receiving a rare diagnosis back in December 2022.

The French-Canadian icon told her legions of fans around the world that she had been battling something known as Stiff Person Syndrome.

Letting her millions of followers in on her secret health battle after cancelling several tour dates, Celine candidly shared all in a moving video posted to her social media channels.

In the video, she explained, “I've been dealing with problems with my health for a long time, and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through.”

“Recently I have been diagnosed with a very rare neurological disorder called the stiff-person syndrome (SPS), which affects something like one in a million people.”

The National Organisation of Rare Diseases explains that Stiff Person Syndrome is “a rare acquired neurological disorder that most often causes progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms.”

SPS affects twice as many women as men and can often be misdiagnosed as Parkinson's disease, multiple sclerosis, fibromyalgia, psychosomatic illness, or anxiety.

Celine Dion cancelled her world tour in late 2022 as she shared her diagnosis

(Image credit: Gotham/GC Images)

There were hopes that the My Heart Will Go On star could have bounced back after making something of a musical comeback with her appearance in Priyanka Chopra’s romcom, Love Again, for which Celine also contributed to the soundtrack.

However, the star’s sister has recently shared an update – and any hopes for a full-scale comeback seem unlikely.

One of the Power of Love singer’s sisters, Claudette, spoke about her condition in an interview with the Canadian publication Le Journal de Montréal.

In the interview, she shared that their other sister, Linda, had moved in to live with Celine in her home as they continued to struggle to find anything “that works” against the condition.

Celine Dion's sister revealed that they hadn't found anything "that works" against the rare neurological disorder

(Image credit: James Devaney/GC Images)

“[Celine is] listening to the top researchers in the field of this rare disease as much as possible,” Claudette shared.

“I honestly think that she mostly needs to rest. She always goes above and beyond; she always tries to be the best and top of her game.”

Speaking about Celine’s decision to step away from performing, she continued, “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”

She went on to suggest that, as of now, any hopes of a big breakthrough are fleeting.

She shared that they had been unable to “find any medicine that works”, but they still believed in the importance of “having hope.”

While fans will no doubt be hoping and praying for whatever is best for Celine, the beloved icon continues to share updates with fans.

On her Instagram last month, she continued a long-held tradition for her LGBTQ+ fans.

Sharing a playlist, she posted, “Love is for everyone, no matter who you are, where you’re from and who you want to love! Be yourself and be loud! Here it is, as a tradition, Celine’s 2023 Pride playlist!”

She also used her social media to pay tribute to the late Tina Turner. 

Jack Slater
Freelance writer

Jack Slater is not the Last Action Hero, but that's what comes up first when you Google him. Preferring a much more sedentary life, Jack gets his thrills by covering news, entertainment, celebrity, film and culture for woman&home, and other digital publications.

Having written for various print and online publications—ranging from national syndicates to niche magazines—Jack has written about nearly everything there is to write about, covering LGBTQ+ news, celebrity features, TV and film scoops, reviewing the latest theatre shows lighting up London’s West End and the most pressing of SEO based stories.