Thanks for raising this issue. I knew it was considered a silent killer but as I don't know anyone who has had the disease I haven't felt compelled to ask for screening. In my experience, screening isn't offered widely for anything these days when budgets are so tight and I know that is wrong. More than 20 years ago I was diagnosed with PCD but as I already had children it wasn't considered worth worrying about. I didn't realise until quite recently that I should have been monitored more closely - it wasn't offered and I didn't ask. Isn't this the case with all sorts of diseases? Thank you for this thread...