suejane
member
Reged: 04/10/2008
Posts: 452
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Sorry.This might be on the wrong forum. Just asking for support if possible. 18 year old gorgeous son , disabled and courageous, is being tested for Wilsons disease.Copper levels in the body are affected. He hopes to enter hospital for tests next week . Wish us luck he doesnt have it? Please? Best wishes always.x
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45ginny
member
Reged: 12/08/2009
Posts: 261
Loc: Sheffield Sth Yorkshire
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Hi suejane. Yes, I do wish you luck. I can't believe this as my step-son is being tested for the same and had never heard of it before. Today we are doing the 24hr urine test. He also has Asperger's Syndrome and suffers hugely with anxiety and stress. Hope we both get good news but yes, my best wishes are certainly with you.
Ginny45 xxx
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JulieJ
member
Reged: 29/12/2008
Posts: 549
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Oh SueJane - yet another worry for you. I hope it works out not as bad as you fear. I have to say I've not heard of Wilson's disease at all.
Ginny - all the best for you and your son as well, as it sounds like he (and therefore you) have a lot to cope with on your plate as well.
How precious health is in the end - can't believe I used to take it for granted when I was young....
Best to all - Julie.
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Little_Dragon
member
Reged: 04/02/2008
Posts: 586
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SueJane, I've never heard of Wilson's disease either but will google it later. You seem to have a lot to cope with at the moment so good luck and best wishes to you and your Son.
Ginny what an awful coincidence, all the best to you and your step-son too.
Julie I think most of us take our health for granted when we are fit and well.
Hope there is a positive outcome for you all.
Iris x
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suejane
member
Reged: 04/10/2008
Posts: 452
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Best wishes to you Ginny. My son also suffers hugely from anxiety and takes Fluoxetine daily. Thanks for your mesages, i dont feel so alone now ,i hope we can all enjoy good health some of the time! I hope all goes well for you Ginny and i hope you will let us know?
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suejane
member
Reged: 04/10/2008
Posts: 452
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Hi there. Son came out of hospital today. Results next week. Best wishes and keep dry and safe everyone! Not bad in Cardiff today, wet but no gales yet. xx
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45ginny
member
Reged: 12/08/2009
Posts: 261
Loc: Sheffield Sth Yorkshire
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Hi Suejane hope the tests weren't too bad and the results will be good. My SS went yesterday for an EEG and other tests. Now waiting app't for CAT scan. No gales here either and reasonably warm so far. Take care Ginny45 xx
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suejane
member
Reged: 04/10/2008
Posts: 452
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Hi Ginny. Thanks for your message. I hope all goes well for you.Son not too happy in hospital at night,i couldnt stay with him, but he managed and we await results.I think the staff were ok but i had to remind them of his anxiety levels, they shoot up if hes anywhere other than his own room at night, and i think they were mindful of that.He just so happy to be back to school and routine .
Best wishes x
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