| libby539 |
| (member) |
| 19/08/2008 21:49 |
Motor Neuron Disease
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Can anyone advise me? My Mum in law has just been told that she has MND. We are all devastated, we thought that she had had a stroke several weeks back but she has been getting worse by the week, it has effected her throat and tongue she can no longer swallow or talk, it is all very very sad, she is going to have a 'peg' (tube) fitted to allow her to feed. I have spent the day on the web reading up on the disease - I feel sick at the thought of what is going to happen in the future and realise that the out look is very grey..
I know I can get lots of information from the relevant websites but I am wondering has anyone else among us had any dealings with this? Any advise would be gratefully received.
Libby
| Mar5ha |
| (member) |
| 19/08/2008 22:04 |
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Re: Motor Neuron Disease
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Oh my dear Libby - so very sorry for your mum in law and your family to have to cope with such a cruel disease. In your searchings on the internet are there any support groups that could offer you some help and advice?
Thinking of you x x x Marsha
| duckegg |
| (member) |
| 19/08/2008 22:49 |
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Re: Motor Neuron Disease
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Dear Libby
So sorry to hear about your mum in law - I have no personal experience of this awful disease and unless someone responds to you here who has can only echo what marsha has said about contacting the nearest support group you.
I can well understand how you all must be feeling and although you don't say whether your mum in law is in hospital or being cared for at home it's important that you should try and obtain all the practical and financial help you are entitled to so that you can look after her in the best way possible.
Thinking of you
| Twinkle |
| (member) |
| 20/08/2008 16:27 |
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Re: Motor Neuron Disease
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Dear Libby
I have sent you a private email which you may find useful!
With love
Twinkle
| libby539 |
| (member) |
| 20/08/2008 19:08 |
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Re: Motor Neuron Disease
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Thank you all for your kind messages, and to you Twinkle for you PM which we really do appreciate.
Libby xxx
| Treetops |
| (member) |
| 20/08/2008 22:37 |
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Re: Motor Neuron Disease
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Libby, I have no advice or knowledge to share about this devastating illness, but just wanted to let you know that you are (all) in my thoughts and prayers as you try to come to terms with it and find the emotional strength to help your family through it.
With love and (((hugs)))
Treetops x
| PLASMO |
| (member) |
| 20/08/2008 22:52 |
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Re: Motor Neuron Disease
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Libby,
What sad news for you and your family. Dont forget miracles do sometimes happen, and every day medical knowledge improves. Take Care Plasmo x
| Brenda1948 |
| (member) |
| 26/08/2008 18:39 |
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Re: Motor Neuron Disease
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I'm so sorry. This is a horrible illness. Have you been in touch with the Motor Neurone Society? My aunt suffered from MN Disease, and her family found the help and support they got from the Society invaluable.
http://www.mndassociation.org/
Good luck to all of you.