Elsie
(member)
24/06/2009 15:20
Re: my daughter has Juvinlle arthritis (JIA) is anyone else trying to cope

Hi Jodawson, I am so sorry to hear about your little girl. That is a very early diagnosis. I was diagnosed aged 7 and had it particularly bad between ages 7 and 9 - couldn't go to school cause in those days there were no lifts and I couldn't climb stairs. If I needed the loo at home, my dad had to carry me as we had no downstairs toilet.

Hopefully your daughter will go through quite lengthy periods of remission. Apart from a nasty time in my 20s, my arthritis has been manageable. Even toyed with teaching aerobics some time back!

I think treatment has come on leaps and bounds since I was a kid (no longer a kid at 43!). I had some hideous medicines to take, most of which I couldn't keep down. I still don't like milk or jam cause that's what they used to mix my medicine with to make it more palatable!

I'm sorry I can't be of much help re todays treatments. Am actually waiting for my rheumy consultant to call me back as I've a bothersome knee at the moment. However, like I said earlier it's not been all bad and..........it's a good excuse to get out of the gardening!

Welcome to the forum and give the wee one a big cuddle from me. She's being very brave.


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